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Author Topic: Double Braced  (Read 67048 times)

Offline Bracesx3

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Double Braced
« on: 12. September 2023, 05:30:13 AM »
I didn’t share this earlier because I wasn’t sure if anyone was interested.
In addition to my orthodontic braces journey, I’ve been struggling with back pain and issues for several years.
I’m a disabled veteran and get most of my medical care through the VA. They’ve been treating my back pain with physical therapy and radio frequency ablation-which is an unpleasant procedure. Last year, I also had shoulder problems and was again provided physical therapy. Upon evaluation, one of the things they found was a winging scapula. This by itself is t that noteworthy except when I had my back eval, they noted that one half of my pelvis tilts forward. I asked if my back problems and shoulder issue could be related to scoliosis. I was assured that wasn’t possible. of note, the VA had prescribed a TLSO brace for my back previously, but for spinal instability. I didn’t mind wearing it, but it was very bulky and was meant as a reminder instead of a brace that actually held me in the proper spinal position. 
I decided to not take any chances with my back, in the event something else was going on that could be better treated, and sought an outside evaluation. Wouldn’t you know I was right. I have double curve scoliosis- a lumbar curve and a thoracic curve in the other direction. So after seeing an outside provider with copies of my MRIs, and a new set of X-rays, along with him conferring with another specialist, their agreed upon opinion was that a custom spinal TLSO orthosis to be worn on a regular basis would provide the best care for me. I was scanned about a month ago and last week my back brace was ready. I had my initial fitting today. There are a few alterations that need to be made, so it won’t be ready for me to start wearing until tomorrow.
I was given 2 options for wear. The first is 8-10 hours per day, and possibly after 3 or 4 years, I might be able to wean off of it. The other option is 20-24 hours a day which would most likely require 2 1/2- 3 years of wear before weaning out of it. They both have their pluses and minuses. Make no mistake, this brace is very restrictive. It holds my shoulders on both sides all the way down to my hips. I can feel it pulling my back in the proper position which relieves a lot of my pain, but is overwhelming right now in its limitations. It will take some time getting used to in addition  to being in the middle of orthodontic treatment (which I actually enjoy). I feel like I’m a middle aged stay at home mom reliving somebody else’s high school life. I’ll provide an update in a couple of days to let you all know how it’s going and which plan I decide to follow.

Offline Bracesx3

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Re: Double Braced
« Reply #1 on: 13. September 2023, 02:27:16 AM »
I picked up my brace this morning after one last fitting. The area under my armpits are still really high making me look like a football linebacker, but my doctor wants to keep it that way for the next week to see if my spine will stretch out. On my break in schedule, it said to start with 2 hours today and add an hour each day until I reach 20-23 hours a day. The decision on how best to wear my brace was made for me by my doctor.
I got home and put it on for two hours as instructed. I tried doing a few things around the house, one of them being laundry- I can’t reach the floor to pick anything up! I went through the two baskets that had a mishosh of the kids’ clothes that I could reach and was able to put a load together. I’ll need a grabber stick moving forward. I tried sitting down, but the brace dug even further into my armpits, so I stood back up. I cleaned the kitchen from breakfast this morning and went through the mail that was on the table. I was exhausted from waking up at 5:15 this morning to get the kids ready for school and the nervousness of picking up my brace, so I decided to try laying down. There was nothing graceful about it. I sat on the edge of the bed, and leaned toward my pillow, which stared easy enough. But when I was almost there, my arms got tangled up and stuck. I managed to arrange my feet to help me roll over, which turned into more of a flop on my back. I laid there for several minutes just taking stock of what my life is about to become. My orthodontic braces are still very present. I still have my cross bite, and haven’t noticed the slightest movement attempting to widen my arch with just arch wires. I’ve gotten pretty used to only having four teeth to chew with. I miss being able to bite anything. I went to a meeting last week that was catered…with sandwiches. I felt like a fool trying to eat in front of everyone, especially considering a few of the attendees are city council members and mayors of cities in my county. I love my orthodontic braces, and secretly like the loss of control over them, but sometimes they can be humiliating. And I feel my embarrassment and humiliation will increase for awhile once I gain the courage to venture outside wearing my back brace. I’m not kidding when I say I’m doing the math to figure out how to get my brace time in at home for as long as I possibly can. I think I have about three and a half weeks before I can leave my house for only three hours at a time, and that’s only if I can tolerate sleeping with it on throughout the night. ????

Offline bracessd

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Re: Double Braced
« Reply #2 on: 13. September 2023, 16:54:52 PM »
Thanks for your service and for the update. I hope the brace helps and you get relief in your back! Will you be sharing pictures?

Offline napacaster

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Re: Double Braced
« Reply #3 on: 13. September 2023, 18:22:05 PM »
I hope that you can get used to your brace very soon and it relieves your pain. Must be really tough for you right now.

Best wishes,
NapaCaster

Offline mr_90proof

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Re: Double Braced
« Reply #4 on: 13. September 2023, 22:57:14 PM »
I wish you the best of luck with your treatment.  I hope it gets easier for you.  Thank you for sharing with us.

Offline Bracesx3

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Re: Double Braced
« Reply #5 on: 14. September 2023, 06:02:28 AM »
Thanks for your service and for the update. I hope the brace helps and you get relief in your back! Will you be sharing pictures?
I would love to, but have been having difficulty. I’ve previously tried using multiple devices and different browsers to no avail. I ended up changing my profile picture instead. I tap on Mona Lisa and get this:, but don’t know what to do with it. Any suggestions?

Offline mr_90proof

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Re: Double Braced
« Reply #6 on: 14. September 2023, 07:30:50 AM »
https://dereferer.me/?https://imgur.io/

With imgur, you can upload pics, open them in a browser, copy the link, and paste link in a thread.  The image won’t show up, but anyone can click on it and see it open in a new window.

Offline Bracesx3

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Re: Double Braced
« Reply #7 on: 14. September 2023, 16:49:28 PM »

Offline bracessd

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Re: Double Braced
« Reply #8 on: 14. September 2023, 17:07:40 PM »
Nice!

Offline Charlie0186

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Re: Double Braced
« Reply #9 on: 14. September 2023, 17:41:19 PM »
That looks unforgiving.  I hope it works for you and that your back soon feels better.

Offline radian

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Re: Double Braced
« Reply #10 on: 14. September 2023, 18:48:50 PM »
https://dereferer.me/?https://noreferrer.me/?https://dereferer.me/?https://imgur.com/a/bZ7fmPD
Here it is.

Nice brace ! It does not seem so hard to wear but I'm not at your place.

How do you feel with it ? Do you think you'll be able to wear it 20-24h per day, as you need ?

How long is your braces treatment ?

Offline mr_90proof

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Re: Double Braced
« Reply #11 on: 15. September 2023, 00:12:50 AM »
Thank you.  That looks like a Scolibrace.  Those arms or outriggers look like they would take some getting used to.  The whole thing does.  But it does seem like a lot of adults are getting improvement from adult bracing now days.  And providers sometimes can make modifications to improve comfort, either with additional padding, removing some material in places, or some combination.  The color pattern you choose is really pretty.  I wish you the best of luck getting acclimated quickly.  I am sure it will have some bumps but I am sure you will.  And once that happens, I hope the brace really helps short term with the pain and long term provides the correction you need.

I hope you will keep us updated.   I can't speak for others, but I do hope you get relief.  I am sure your provider gave you information, but there are some informative videos on youtube that might help with tips and tricks.  Here is one testimonial that seems to mirror your experience.  But the good news is that it will get better.

https://dereferer.me/?https://www.youtube.com/watch?v=-HX0iJj5ZPg

Offline napacaster

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Re: Double Braced
« Reply #12 on: 15. September 2023, 02:50:48 AM »
That's quite the brace! I hope it helps your pain and that you can become comfortable wearing it. With time and maybe some modifications to the brace, it will be more tolerable.

Offline Bracesx3

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Re: Double Braced
« Reply #13 on: 15. September 2023, 08:48:11 AM »
Thank you to all of you for the well wishes. I still have about a year and a half left with my orthodontic braces. I will continue to update my journey with both braces.
I finished my wear time yesterday, and about an hour or so after taking it off, I had worse back pain than when I started. It’s difficult to describe, but I felt like my bones were shifting. My doctor said it was normal and can happen over the next 2-4 weeks. Yikes! It finally subsided a few hours later.
I actually ventured out of the house today with my husband while wearing my back brace. Getting into his truck wasn’t bad, but I realized as soon as I sat down that I couldn’t reach any of the seat controls to move into a more comfortable position. Fortunately, my hubby moved them for me. We went to Best Buy to pick up my son’s computer that needed some work. I feel like people noticed my brace under my clothes, but I didn’t notice anyone staring non stop. Because it was late morning, there weren’t a lot of people there either, which was nice. I’m definitely not ready to venture into Costco size crowds anytime soon. I have developed some pretty bad bruises under my arms from the pressure off the brace. I hope they diminish over time, but I think there are still a few adjustments to be made.
Tomorrow I’ll be up to five hours.
Again, thank you to all of you for the continued support.

Offline Bracesx3

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Re: Double Braced
« Reply #14 on: 20. September 2023, 17:04:25 PM »
Here’s my current orthodontic situation for those interested. https://dereferer.me/?https://imgur.com/a/xE5s5Vi